A guide for helping our children lead meaningful and independent lives as they reach adulthood.
In the next five years, hundreds of thousands of children with autism spectrum disorder will reach adulthood. And while diagnosis and treatment for children has improved in recent years, parents want to know: What happens to my child when I am no longer able to care for or assist him? Autism expert Chantal Sicile-Kira and her son Jeremy offer real solutions to a host of difficult questions, including how young adults of different abilities and their parents can:
... navigate this new economy where adult service resources are scarce
... cope with the difficulties of living apart from the nuclear family
... and keep a job that provides meaning, stability and an income
... create and sustain fulfilling relationships
"If you are raising a teen with significant autistic challenges, you need to read A Full Life With Autism. If you have a young child who is nonverbal, you need to read A Full Life With Autism. Chantal Sicile-Kira's newest book is co-authored with her son Jeremy, who did not speak, but who writes eloquently and powerfully. The mother-son dialogue, facilitated by keyboard and iPad, is a striking example of the potential inside many nonverbal people. Together, they walk the reader through the challenges of leaving home and establishing an independent life as an adult. The step by step manner in which they do this, and Jeremy's calm and steady voice, will be very reassuring to readers. Topics discussed include making friends, romance, housing, college and finally, earning a living. I particularly like the way this book weaves both Chantal and Jeremy's perspective into each story. In the latter part of the book, some chapters are also illustrated with stories from other families. This is a very practical guide that I highly recommend."--John Elder Robison, author of Look Me in the Eye and Be Different
"Chantal Sicile-Kira, and the remarkable (once considered "retarded") Jeremy Sicile-Kira have created a work wherein their common goal is obvious: Separation, and independence for Jeremy. Their writing is filled with a refreshing respect for one another, and very often the material is quite brave."--Michael John Carley, Executive Director, GRASP, ASTEP, and the author of Asperger's From the Inside Out
"For individuals with autism what we 'see' rarely tells us what each is thinking, feeling or capable of accomplishing. We must look beyond the 'behaviors' to understand what each is trying to communicate. A Full Life With Autism does this and so much more. Truly a must read!"--Ricki G Robinson, MD, MPH, member, Scientific Review Panel of Autism Speaks and author of Autism Solutions: How to Create a Healthy and Meaningful Life for Your Child
"A Full Life With Autism is a must-read book for parents and professionals in the autism field."--Steve Edelson, PhD, Director, Autism Research Institute
"The transition into adult life is poorly understood and seldom researched in the field of autism. Jeremy and Chantal Sicile Kira have given us important lessons from their knowledge and experience. They write honestly and clearly and their book will be of great benefit to the thousands of other families who wish to support their loved one with dignity and respect."--Anne M. Donnellan, Professor Emerita, U. of Wisconsin-Madison
Chantal Sicile-Kira is an award-winning author, columnist, and speaker on autism. The author of four other books, Sicile-Kira writes for The Huffington Post and PsychologyToday.com.
Jeremy Sicile-Kira was diagnosed as severely autistic when he was born in 1989. In 2010, he gave a commencement speech at his high school graduation. Jeremy writes for autism magazines, AutismCollege.com, and was featured in Newsweek. In 2007, Jeremy was on MTV's True Life in the episode, "I Have Autism," which won a 2007 Voice Award.
Temple Grandin is the bestselling author of Animals in Translation, among others.
256 pages. 2012