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As a parent of a child diagnosed with Down syndrome, you may be feeling unsure of what to do next or where your child's journey will take you. In this book, authors Jen Jacob and Mardra Sikora share their experiences and guide you through life with DS with expert advice from diagnosis to adulthood. Each page teaches you ways to support your child through major milestones; nurture their development; and ensure that they succeed behaviorally, socially, and cognitively. You'll find valuable information on:
... Sharing the news with loved ones;
... Transitioning into primary school;
... Developing your child's social skills;
... Discussing future opportunities, including employment and housing options.
With The Parent's Guide to Down Syndrome, you will have the tools you need to raise a happy, healthy, and thriving child.
Jen Jacob is the cofounder and vice president of the Down Syndrome Diagnosis Network.. Jen is the author and a contributor for Unexpected: Stories of a Down Syndrome Diagnosis. She lives in Iowa with her husband and four children; her youngest son, Owen, has Down syndrome.
By day Mardra Sikora balances a patchwork of community, advocacy, work, and family. She believes in the power of words and writes both fiction and nonfiction to advocate for and with her adult son Marcus. You can find her and Marcus on the blog Grown Ups and Downs as well as on various blog networks, including The Huffington Post.
256 pages. 2016